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clinical trial support group


Posted: Jun 14, 2012

don't know if y'all remember me, been gone so long.  i haven't worked since february.

so, i fought the cancer with nephrectomy, so far so good, but now i'm on a clinical trial on a drug called everolimus.  i've searched everywhere for others on this med, but novartis was only looking for 1190 folks to be on this stuff, and i guess that's too small of a group for other people to be looking to each other for support. 

the side effects are bizarre.  weird acneiform lesions attacking my ears, mouth sores, confusion, fatique, memory loss, did i mention confusion and fatigue?

i'm 5 months in with 7 months to go and just looking for anyone in the same situation.

 

;

everolimus - Maggie May

[ In Reply To ..]
That drug has been used for other cancers. You might want to check into support groups for breast, lung, ovarian cancer. Although their cancer is different, the side effects from the drug might be the same or similar, and they might be able to help. Good luck to you.

I don't have any answers but I want to say - I hope things go well for SM

[ In Reply To ..]
you. I think you are a very courageous woman.

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