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white matter lesions on brain and now gliosis?

Posted: Jan 9, 2012

Okay been battling "possible MS" for 3 years, started with facial tics, numb head. Went to 3 neuros who said did not have MS and it was my neck. Now I have bilateral trigeminal neuralgia and both legs are going numb. All brain MRIs show white matter lesions and now "gliosis" I cannot take much more. I have been treated horribly since I am an MT and they think I think I have everything because I listen to them all day. I am seeing my original neurosurgeon who cut my neck open and taking all my brain and neck MRIs. Neck shows neural foraminal stenosis but that does not explain why my trigeminal nerve is destroyed as that comes off my brain stem. Any ideas? Thank you so much!

;

I never bring up my job to my docs for that reason - but

[ In Reply To ..]
I am not sure why you are not asking your Neurosurgeon that question. Please do not go off of the advise of MTs. If you dont get the answers from the neurosurgeon of your choice, go to a new neurosurgeon until you get your answers.

My mom has MS and a dear friend also has MS. It is horrible. I hope that is not what you have.

Ask family doctor about vitamin D supplements... and a large dose of it by the way.

Thank you for the info on vitamin D. - mt2

[ In Reply To ..]
I am so sorry to hear your mom and friend have MS. I am going to take my scans to the neurosurgeon Monday. I don't know if they can differentiate MS lesions or not but will try since the neuros have been no help.

I have no insight regarding your question - but...

[ In Reply To ..]
want to wish you well. I really hope you get this straightened out. The frustration of not knowing must be driving you crazy, and I am so sorry you are going through this.

Thank you! - mt2

[ In Reply To ..]
I am really scared. I know a lot of people get misdiagnosed all the time or undiagnosed. I have many questions for the neurosurgeon. I know MS and the cervical spine are associated. I bet if this is MS they just cannot see the lesions in my spine due to the hardware. I will ask him. This all started as facial tics. Just no answers. It is very very scary to feel like this all the time and try to work. Thanks for thinking of me. I really appreciate it.

POSSIBLE helpful information. - Alternatives

[ In Reply To ..]
Oh, I am so sorry you are going through all that.

The other night I was reading some articles about VITAMIN D levels and their relationship to MS; specifically, LOW vitamin D and MS.

Also, ANY nerve -- including the trigeminal -- may potentially benefit from pyridoxine (vitamin B6) therapy since B6 is THE vitamin for nerves (used to treat carpal tunnel syndrome, etc.). I learned that years ago from the research Ph.D. I worked with at a teaching hospital.

This information is just FYI for you to check out. Not all docs are into/trained in/amenable to vitamin therapy (favoring Rx medications instead), so if you just "ask the doctor what he thinks" he may poopoo it. Should that happen, I would encourage you to continue seeking competent medical care until you find it. You only have one body, and we only get one shot around this track.

Take care, and God bless.

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