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Update on my condition


Posted: Apr 28, 2016

Well, I went Monday to my cardiologist and he put me on new diuretic. So far it works in the morning, but I swell in the afternoon and evening. If two once a day do not work, I have to take four (two twice a day) and two potassium. I just wish something would work. My legs, ankles and feet are still swollen and sore around ankle/leg connection. Makes walking hard and I usually limp a lot and don't stand long or walk long. I looked and you are supposed to exercise some. I just can't yet. Continue to pray. I am not at all convinced that I won't need something else. He says I have diastolic heart failure. I am surprised he didn't up my heart medication though. Maybe he will. I go back to him on May 11 here in my home hospital. Some stupid person cancelled that appointment and I want to know who because he told me to keep that appointment. I still am disappointed because I still want to feel better soon and be able to do something other than lie on the couch with my feet propped up on pillows. Thanks to all of you for your prayers. I am totally shocked that it is taking so long to get over. I know heart failure is not a good diagnosis though. However, so far I do not have to go on dialysis which I sure don't want.;

Still praying for you. - Your friend.

[ In Reply To ..]
I've followed your posts, but this is the first time I'm writing. I just want you to know prayers are continuing for you. Take care. God loves you.

Thanks friend - anonie

[ In Reply To ..]
I appreciate it. I think I will end up taking four a day. The swelling moves around so much all the time, but at least I can breathe better.

Still praying - believer

[ In Reply To ..]
My aunt is going through the same as you. She was put in the hospital for a couple of days and given diuretics. She's better and home now, but has to be careful with diet, salt, etc.

It's good that you're seeing some improvement. Stay positive. Lots of people give up when they face hard times, but you sound like a strong person, a fighter. I hope it helps you to know that there are caring people on this board who are still praying for your situation. There's power in prayer - it's real...Keep us updated...

To believer - anonie

[ In Reply To ..]
I just wish they had done what your aunt had done in A HOSPITAL. I have suffered well between 4-6 weeks with this.

My feet, ankles and legs are still not coming down and they hurt so much to walk on. My skin also hurts, muscles etc. I have cracked skin on one ankle and am afraid that it will turn into some kind of an open wound.

I have to call Monday to let the cardiologist know how I am doing. I imagine I will have to go to four pills a day. I am taking Demadex. It works a lot better than Lasix at the same dose.

I hope I will be able to resume my regular activities and hopefully try to exercise a bit to lose some blubber.

I am watching my salt though. Have been during all of it and still didn't help.

Appreciate your updates... - Believer

[ In Reply To ..]
It's interesting how quickly my aunt came down with her condition. I just saw her about 6 to 7 months ago and she was fine, no problems at all that I could really see. She's 92 years old. Got news today that her swelling is coming back again in her feet and legs. She initially didn't want to go to the hospital and had to be convinced. She's not demented. She's is very sharp minded. A home health nurse checks on her.

It sounds like this is all something that has to be managed day by day until the right combination of medicine kicks in. That's good you're keeping in close contact with your doctor. I wonder what your PCP would recommend for your skin to prevent wounds. Not sure your cardiologist would know, but maybe would...

I'm continuing to lift you up in prayer. When we're doing all we can and it doesn't seem like anything is really helping, that's the time to thank God all the more for what He is about to do on our behalf. We walk by faith, not by sight. May God comfort and strengthen you...
Thanks Believer - anonie
[ In Reply To ..]
I am getting depressed. Don't understand that exactly but may have to do with Mother's Day maybe.

My ankles, feet and legs keep swelling and that is what is so discouraging. You think because they are down for a while that perhaps they won't do it again.

Imagine I will have to take four pills of Demadex. Going to call doctor tomorrow. I am not going to call my regular doctor yet.

So far they are not getting any worse. I keep putting lotion on them, medicated lotion like Amalactin. I have used that for other skin problems I have. So far so good. Occasionally, I use Sween Cream.

Wearing support hose doesn't really help any. They just swell around them and are too tight around my calf. Discouraging. I used to be able to wear those hose and take my diuretic and it would go away. Not this time.

Scares me about the heart failure thing. I know that isn't good. I have a cousin younger than me with the same heart problem which we got from our fathers' sides and she has a pacemaker/defibrillator thing. I hope I don't need that. I know they often give another medication, but can't think of the name of it.

It is just scary to me and depressing. I am alone so it is worse when I don't have people real close to me, relatives I mean. I have a son who cares nothing about me. He lost his stepmother. Imagine he cried at losing her. Oh, that hurts me so badly. I need him in my life. He is my only child. I think part of this is Mother's Day. My mother has been gone since 2002. I still miss her.
Forgot to wish your aunt well - anonie
[ In Reply To ..]
I hope your aunt gets better soon.

Let me know about her. Okay?
Thank you... - Believer
[ In Reply To ..]
so much, anonie, for wishing my aunt well. I should know more about her in a few days. I do recall my cousin saying her heart was beating too slow. So that also worries me for her, as I don't think she would agree to a pacemaker or defibrillator. I've lost several relatives in these past 12 months, most of them up in years, but still missed so very much. I just thank God for each one of them and for the blessing of having had them in my life for as long as I did.

I will keep you in prayer for your needs and that God will fill your heart with joy and gladness, especially where your son is concerned, even in the midst of such a difficult time you're going through. He truly does care and will comfort us right where we are...

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