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Gab Board Latest Messages: Ha-ha. We're still at it...

I need some suggestions for resources about Autism. - MissMT

Posted: Jul 15th, 2018 - 8:15 pm

I am starting here because I don't know where to start.  I have a 3 year old granddaughter who I suspect is autistic.  My son and DIL have expressed concerns but are basically in denial.  She does not talk, not even to say mommy or daddy, nothing.  She basically grunts, whines and yells to express herself.  She very rarely makes eye contact.  She will occasionally look a person in the eye, but it is fleeting.  I can be sitting right next to her, saying her name and she will not turn and look at me.  She will run in circles around her dad.  She run and run making noise and then stop abruptly to watch TV, completely mesmerized by the TV.  Then she will run again.  She repeats this behavior over and over.  Recently, she has started chewing on furniture, the deck, trees, wood chips.  Also she has had a couple of seizures with postictal symptoms.  My son and DIL did take her to the ER for the seizures and have an upcoming appointment with a neurologist. 

I am very concerned and I don't feel my son and his wife are concerned enough.  They have been told to call the children's hospital and get an appointment with the autism clinic, but there is a waiting list and they need to call and get on the waiting list and get a packet mailed to them.  They have yet to call.  I've told them to make an appointment with their pediatrician and see if he can't get them in sooner.  But they haven't.  They just park her in front of the TV and let Mickey Mouse babysit her all day.

I keep bringing it up to them and they say they are on top of things, but they are young and well not very wise.  They have a 2 year old daughter as well and she is talking, interactive, engaging and developing normally.  Because she is developing normally, it is making her sister's delays even more obvious.

I have offered to take the younger sister while they have her evaluated or even just spend one on one time with her, but they haven't taken me up on it.  

So, I'm looking for resources so that I can learn about autism and give them a list of questions for when they finally do go to the clinic.  There are so many websites out there and I just want to know which one I should go to.  Also I would like to here from anyone who has a child or grandchild with autism and I'd like to hear about your experiences.

Thanks



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