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Fibromyalgia

Posted: Sep 14, 2013

Just been diagnosed with fibromyalgia, after having systemic lupus for many, many years. Seems the lupus is in remission, but now fibro has come along. So painful. I feel for the people about 20 years or so ago who were told it was just in their heads and given sedatives and treated like it is a psychiatric disorder. My rheumatologist said yes the medical community has recognized fibro and chronic fatigue syndrome as bonafide diseases for a while now. They are doing a trial with naltrexone, the drug they give to alcoholics. It is given low dose and seems to help fibro.

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How were you diagnosed? sm - CrispyCritterMT

[ In Reply To ..]
I think I have it too. I have a lot of the symptoms, but don't think I have all the trigger points. My mother has it too.

Fibromyalgia - ea

[ In Reply To ..]
I was diagnosed by ruling out everything else, my symptoms and the physical exam with the positive tender points. I have lupus and RA for decades, but they both came up negative, in remission. So then my rheumatologist started focusing on fibro. IMHO, it is the most painful horrible disease. Even lupus gives you a break every once in a while, but fibro constant pain, fatigue, muscle weakness, depression, on and on. My heumatologist is gonna start Cymbalta and if that does not work I am going to ask for naltrexone.

I was diagnosed over 10 years ago. - Dinosaur

[ In Reply To ..]
The treatment and medications have come a long way since then. I have not been tried on the naltrexone, but I was tried on the Lyrica and I could not tolerate that. The Savella works well for me, as does the Neurontin 300 mg but I only take that in the evening because of fatigue. I also take Flexeril in the evening. Provigil is my saving grace, as I find the fatigue to be one of the worst symptoms. It is sold in generic form now so the price is reasonable. I've been to PT a few times which I do myself at home now, but if you have access to a pool that will help greatly. Some days are so painful you don't think you can move, but stretching and movement will help. I hope some of my suggestions help you, I know how debilitating this diagnosis can be. Feel free to contact me if you have any questions, or if I can help in any way.

I was dxd w/FM in 1995 - ...and

[ In Reply To ..]
...I told the rheumatologist I did not want any meds whatsoever. She recommended Yoga stretching.

First, get approval from your doctor, then start slowly. I chose to just use a book, not expecting to ever twist into a pretzel. You can go to classes if that's better for you.

My FM is very well controlled, including the fatigue, brain fog and pain. Serious depression is not an issue for me, so I don't know if the Yoga will help with that part of it. If you have any sort of tension, it will help with that. I chose not to meditate (has a weird opposite effect on me), but many people have found that part of Yoga to be wonderful.

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